_{Penn Data Store (University of Pennsylvania Health System)}

_{Penn Medicine's clinical data warehouse, includes patient demographics, bed movements, coded procedures, coded diagnosis, medical history, allergies, lab results, microbiology, blood bank, pathology, vital signs, surgery, anesthesia, linkable to biosamples from Penn Biobank}

_{Penn Data Store Website: https://www.med.upenn.edu/dac/penn-data-store-warehouse.html}

<sub>1. GO TO Penn Medicine’s  INTRANET http://uphsxnet.uphs.upenn.edu/home/
2. Under SHARED RESOURCES (Left hand side) select INFORMATION SERVICES / TELECOM

3. On the Penn Medicine IS page select TECHNOLOGY (Menu on the top of the page)

4. Then select Penn Data Store http://uphsxnet.uphs.upenn.edu/is/pds/

5. From The PDS Page select Data Report Request under Requests (Right hand side)

6. Read the guidelines http://uphsxnet.uphs.upenn.edu/is/pds/pds_instructions.html

7. Select “Please click here to access the online data request form.”</sub>

_{Penn Medicine Biobank}

_{Provides access to a annoted blood and tissue samples, linkable to Penn Data Store}

_{Biobank Website: http://www.itmat.upenn.edu/biobank/researchers.html}

_{All studies requesting specimens must have IRB approval, requests will be reviewed and ranked with NIH funding getting priority biobank@upenn.edu.  It is recommended to consult the PMBB technical director to review sample details and feasibility. Investigators can submit applications via email to Kristine Gindele kgindele@mail.med.upenn.edu.}

_OptumInsight

_{United Health care claims database system, data available  from 2001 to 2016, includes inpatient, outpatient and pharmacy claims , laboratory results}

_{Must be affiliated with LDI or CCEB; Email Jibby Kurichi for access jkurichi@pennmedicine.upenn.edu. To connect with other Optum users contact Christina Kang-Yi ckangyi@upenn.edu or Mary Regina Boland mboland@pennmedicine.upenn.edu to participate in the Optum Users Group monthly meetings. HSRDC charges for access to servers, payment can be included via grant https://ldi.upenn.edu/ldi-health-services-research-data-center/optumins….}

_{5-state Medicaid + Medicare data for dually-enrolled, 1999-2012}

_{Receives data from state Medicare/Medicaid programs, available information include demographics, in patient claims, out-patient claims, pharmacy claims}

_{Contact Samantha.Soprano@pennmedicine.upenn.edu}

_{Need to work with the Biostatistics Analysis Center.}

_{CMS charges a $2,000 reuse fee.}

_{Pediatric Health Information System (PHIS)}

_{Pediatric database that includes clinical and resource utilization data for inpatient, ambulatory surgery, emergency department, and observation unit patient encounters for 45 children's hospitals}

_{Restricted to CHOP; email analytics@childrenshospital.org}

_{Benefits, Features, Reporting, and Eligibility/Enrollment : https://www.childrenshospitals.org/programs-and-services/data-analytics….}

_{Flatiron (cancer treatment and outcomes)}

_{Oncology; Electronic health records from 2M+ patients around the country at 800 unique sites complied from 14 longitudinal datasets updated monthly}

_{Email Penn@flatiron.com for access to the "Cohort Explorer"; they will send you a project proposal template. Proposals are reviewed twice a quarter.}

_{National Ambulatory Health Care Survey (NAMCS)}

_{National probability survey that provides information on inpatients discharge from non-federal short stay hospitlas in the US, conducted annually, data available from 1965 to 2015}

_{Free download via CDC, NCHS https://www.cdc.gov/nchs/ahcd/datasets_documentation_related.htm}

_{https://www.cdc.gov/nchs/ahcd/index.htm}

_{National Hospital Ambulatory Medical Care Survey (NHAMCS)}

_{Data on the utilization and provision of ambulatory care services in hospital emergency departments, outpatient, and ambulatory surgery locations of noninstitutional general and short-stay hospitals.}

_{Free download via CDC, NCHS https://www.cdc.gov/nchs/ahcd/datasets_documentation_related.htm}

_{More info available at https://www.cdc.gov/nchs/ahcd/index.htm}

 _{National Health and Nutrition Examination Survey (NHANES)}

_{Program of studies designed to assess the health and nutritional status of adults and children in the United States, combines interviews and physical examinations, includes the National Youth Fitness Survey conducted in 2012 and collected nationally represented data on physical activity and fitness level of children and adolescents through interviews and fitness tests} 

_{Free download via CDC, NCHS https://wwwn.cdc.gov/nchs/nhanes/Default.aspx; Datasets for the National Youth Fitness Survey https://wwwn.cdc.gov/nchs/nhanes/search/nnyfs12.aspx_}

_{More info available at https://www.cdc.gov/nchs/nhanes/about_nhanes.htm}

 _{National Health Interview Survey (NHIS)}

_{Information from personal interviews from 1975 through present day, collected by the US Census Bureau}

_{Free download via CDC, NCHS https://www.cdc.gov/nchs/nhis/data-questionnaires-documentation.htm}

_{More info available at https://www.cdc.gov/nchs/nhis/index.htm}

_{National Health and Aging Trends Study (NHATS)}

_{Collects data on a nationally representative sample of Medicare beneficiaries ages 65 or older, can be linked to CMS data}

_{Obtaining  Data from NHATS https://www.nhats.org/scripts/dataCollVariableQs.htm}

_{More info available at https://www.nhats.org/}